08/20/05 - Lexi is doing well without the oxygen

	She'll have an echo on Monday to check her pressures again just to make sure all is well
	Her anti-seizure medicine weaning is going well, 1 more week and she will be off of that
	It has been very nice taking Lexi places without out the ball and chain of the oxygen tank
	One problem, now you have to look for Lexi if, you can no longer follow the oxygen tube to know where to find her!!

08/16/05 - Lexi is off oxygen, first time since early March!!!

	It is such a happy day for us...she is so cute!!
	We just posted the first 'no oxygen pic' from a camera phone
	Will try to get better pics up in the next day or so

08/03/05 - Lots of good news to report today

	The transplant team has started to wean Lexi from her oxygen Apparently Lexi's pulmonary pressures are getting better Her flow was cut by 1/2 Monday Hopefully her pressures will stay steady and we can 'cut her off' soon Can't wait to see her without the canula, it has been a long time
	Lexi had an EEG to measure seizure activity inside her cute little head, and it came out as 'normal' This means she has no Seizure activity Previous studies had indicated sub-clinical activity (meaning she was having seizures but you could not physically see them) We expect the Neurologists to either stop her anti-seizure medication or to wean her from it soon
	Lexi is 13 1/2 pounds now, she just keeps packing on the weight She is eating baby food quite a bit She prefers to gnaw on real food: Big chunks of steak Pizza Just loves digging her hands into mashed potatoes A swig of Diet Coke just makes her day
	Lexi got her first hair cut last week - finally with all that hair!!