Updates 03/05

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03/24/05 - Lexi has hit the 8 lb mark!!!!   She is 8 pounds!!!
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She is eating and growing well

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Seems a bit sick today, not sure what is up, her pulmanary pressures are a bit higher still
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The pros want to up her oxygen some more, up to 1/2 liter from 1/8 (whatever that means)

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Will check her pressures Friday

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Something is just not quite right here

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Other then pressure problems, all is well, Lexi is sleeping through the night now

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03/19/05 - Lexi is quite the happy baby, and she eats and eats
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Lots of external stuff going, we'll try to be better about updates

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There have been quite a few new pictures of Lexi added

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Lexi is growing, not 'catching up' yet, but growing
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We are now feeding here when she demands it

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We were feeding her as much as we could every 3 hours

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Since she went on 'demand feeds' her volumes and totals every day have gone up, her stomach must finally be growing

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No spit ups!!!!

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Lexi was put on oxygen last week to help lower her pulmonary pressures, it is working, but she has a ways to go to get them in the normal range (and off the oxygen).  They measure her pulmonary pressures during her twice weekly Echocardiogram

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03/10/05 - Growing, and eating much much better
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Lexi is eating much better, bigger volumes and she will now demand it

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Sorry about no recent updates, Lexi's maternal grandfather passed over the weekend, everyone is quite sad.  Dad is playing Mr Mom all week

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We are playing with a video cam, here is a clip movie 1

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Lexi's pulmonary pressures keep rising
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She was put back on oxygen, to help alive it

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Untreated could be a problem, not sure why it has been rising

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She seems to have been a bit sick the last couple of days, the oxygen seems to have helped her out, she has slept all day and all night the last couple of days, I'll report back Saturday

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03/04/05 - Lexi is continuing to grow and do well
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It is been a week or so since the last update, we are so busy trying to get caught up on our 'regular' life issues and problems...it has been 5 months since Lexi was born and our life was put on hold

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Lexi is weighing in at 7lb 4oz, growing good, eating good...but the pros want MORE! MORE! MORE!

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We had a 'mini' scare this week, Little Lexi doing a 'regular' baby thing
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Lexi got so upset she started to hold her breath...turning a bit purple/ blue

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Being parents of a baby that has spent most of her life on the blue side, it was freak out time!!!  Our newly pink girl is blue!!

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It was not apparent to us that this is fairly normal (Luke never did it), so the first thought was acute, very acute rejection

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Phew!!  She is just doing normal things

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This past weekend we all went to the 'country' home, our real home in Larkspur, it was so relaxing, we hope to start doing this a bit more often

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We will get some pics up this weekend, shame on us for not getting many recently