Updates 2006

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11/25/06 - She walks all over the place!!!
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Arrived at Disney World Friday, she walks around the hotel room as if she has been walking for weeks

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She Started walking non-stop after Thanksgiving dinner

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It is so cute

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11/22/06 - She walks!
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Check out picks from 11/21, she started walking today

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Well, she stands, and will stand all day, it takes some coaxing to get her to take any steps...but she is getting it!!

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Off to Grandparents for Thanksgiving then to Disney World, we will try to update pics, in particular walking pics.

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11/15/06 - Eye surgery went well
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Lexi had eye surgery a week or so ago and her eyes seem to work together much better now

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She is all ready for the holiday season, she has already gotten in to the tree ornaments, and just loves them

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11/03/06 - Still not walking but growing!!!
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It has been a while, but not a lot of new news other then Lexi is growing and getting in to more and more things

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Eye surgery is scheduled 11/09, hopefully this will help her wondering eyes

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She seems poised to just start walking, but still wont let go of things

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Lexi goes up and down the main stairs all day, no more need for gates

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Lexi is starting to swallow solid foods, we were starting to get a little worried the vent damage would require some work to be done in her esophagus (or whereever in her throat), but seeing her swallow is a relief

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08/28/06 - When will Lexi start to walk?
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Lexi continues to cruise furniture and window sills, on her feet all the time, just not willing to let go

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She is speaking more and has more and more words, her favorites:
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Baaaalloooooon

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GitThaBall

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No new or changed health issues to relate

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07/07/06 - Lexi still has not started to walk, close?
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She spends more and more time cruising the couch, chairs, window sills

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We thought she would be walking on her own by now, can't wait!

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She is nearly 21 pounds now, really growing

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Lexi has a mouth full of teeth, including 4 or 5 molars!

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No new news on Lexi's eyes except they seem better, haven't been back to the doctor for that recently

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07/07/06 - Lexi still has not started to walk, close?
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She spends more and more time cruising the couch, chairs, window sills

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We thought she would be walking on her own by now, can't wait!

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She is nearly 21 pounds now, really growing

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Lexi has a mouth full of teeth, including 4 or 5 molars!

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No new news on Lexi's eyes except they seem better, haven't been back to the doctor for that recently

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06/07/06 - Lexi has been busy growing up!!!
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She had eye doctor appt in early may, her lazy eye is getting better, so we are holding off surgery for another month while doc looks at her stroke history (could it not be the typical lazy eye?)

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Went to Disneyland mid-may (See: 5/13  5/14  5/15  5/16 )
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Little Lexi had a blast

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Lexi loved small world, well how can you not like Small World?  She really really really enjoy it

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She is getting closer and closer to walking, she could walk away from coffee table or couch any day now

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05/03/06 - It has been a long time since last update!!!!  Finally
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Added pictures:
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Added pictures from 3/12 visit with heart sister MacKenzie

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Added pictures from 4/11 hair cut

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Will add more pictures in the next couple days

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Lexi is doing very well, growing like a weed, 19 pounds now

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She had 'Transplant' check up a week ago, she did not like it
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Standard tests: EKG, ECHO, Blood pressure, etc

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Blood pressure has been measuring a bit high, so she is on Anilipril for now

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No other problems

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Lexi visited her heart sister for a weekend in early March...a good time was had by all!

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Lexi now pulls her self up to the couch and toddles along it

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She still naps in her jumper...she just loves that thing!!!

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Balls and Balloons are her favorite toys and 2 of her words
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cute how she says Balloon

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Cant take her to grocery store without her yelling: BAAALOOO

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03/07/06 - All is well
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Lexi is growing and growing

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She scoots around the house very very fast, it is hard to keep up with her

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Anything we eat she wants some.

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She is having some trouble swallowing
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She does not want to swallow anything with any sort of chunk in it (seems she only swallows liquids)

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Lexi has appointment with the swallowing clinic, we will report back how that has gone

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Lexi's brother broke is ankle skiing 2 weeks ago, so now he is slower to run away from her she tries to play with him...it is quite qute.

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01/27/06 - Heart cath results are in - She is doing well!!!
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No sign of rejection, via biposy or any view from the cameras

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She is off 1 more med, so she is down to Cyclosporine only, which she will be on the rest of her life

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Her transplant visits are cut back to 1 time every 4 months

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The day of the cath did not go real well
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She was very hungry by the scheduled 11 am start

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Not aloud to eat 6hr prior

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The study was delayed 2 hours - she was a grumpus!!!!

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They had trouble getting a good vein in her groin (she has a few 'poke' marks)   They were able go in thru the neck

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She had lots of sedation, so when once she was 'out', she was calm and basically stay 'out' all afternoon and evening

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She is werking a hear monitor (walking EKG) for 24 after, you can see that in today's pics

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01/16/06 - All is well, her first post transplant heart cath is next week
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Nothing too new and exciting to report

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Posted lots of pictures today

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Had eye dr appt today, her right eye is working better, everyone is happy with the progress

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After her cath, if all is well, we should be able to lower her anti rejection dose and be down to just the one med