Updates 09/04

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Updates 09/04

 
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09/30/04 - Leah is recovering well, Lexi doing well
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Pics: 09/30/04

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Lexi is being kept on 17% oxygen - to keep her nitrogen up so her lungs do not get too much blood.

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Lexi had apnea problems, could be the prostaglandin (IV Dripped to keep PDA open) or her preme age.  Those problems have gone away - could be age or the adjustment to the med.

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09/27/04 - Leah discharged, Lexi transferred to Denver Children's
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Leah is doing very well now, very sore and most of her blood levels are closer to normal, we will be monitoring the levels over the next few weeks

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Lexi is in the care of the team that will be doing the transplant, we are extremely happy that she is here

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Echos on Lexi's heart showed one other complication, should not be much of a problem, but it may prevent her from coming home prior to transplant...time will tell

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09/26/04  -Lexi doing well, Mom recovering very well
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Lexi is #1 on the 'O' blood type list, that is good

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If Leah continues to do as well, she will be out of hospital Monday afternoon

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Once Mom is discharged, Lexi will be transferred to Children's - where the transplant will occur

bulletPics:  http://www.tome.net/sites/tome/home/pics/2004/0904/lexi_day_2.htm

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09/24/04 - Lexi Born at Pres/StLuke in Denver - 4lb 5 oz, 17 1/2 inches
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Ultra Sound confirms HLHS

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Lexi breathing on own

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Med being administered to keep PDA open, causing apnea

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Pics:   http://www.tome.net/sites/tome/home/pics/2004/0904/lexi's_first_day.htm

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09/22/04 - Leah admitted to hosp, diagnoses - Pre-Eclampsia, HELLP Syndrome, Toxemia
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Lexi added to Heart Transplant list

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Leah very sick

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09/08/04 - Met with Denver Children's Transplant Coordinator
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Another echo done - everything looks the same for the most part

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Met Dr B, discuss options & concerns

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Worked with coordinator to understand what occurs from now through the transplant.

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Started paper work to get Lexi on the trans plant list at 36 weeks
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(33 week preggo at the moment)

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If heart becomes available before 38th week, emergency C-Section will take place

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We are all up beat and just awaiting the arrival of Lexi